PINNT, the charity and patient support group for all adults and children managing ‘life on-line’ at home with artificial nutrition therapies, is running the UK’s first ever Home Artificial Nutrition Week
During Home Artificial Nutrition Week, PINNT will be highlighting ways in which AN patients and their families & carers in partnership with the doctors, nurses, dietitians and pharmacists who provide care can improve the patient experience.
“There is no better time for PINNT to be encouraging better dialogue between all on artificial nutrition and their healthcare professionals,” says Chair of PINNT Carolyn Wheatley. “The NHS has declared that the patient must be at the heart of all services provided, and importantly the recently published NICE Quality Standards for Nutrition Support1 promise improved training and support for patients and their families.
Patients and healthcare professionals do not always have the same priorities - what matters from a clinical perspective is not always what matters to us as individuals living with AN day in, day out. That ‘gap’ can often interfere with establishing and maintaining good patient/professional relationships and improving experience. As patients we know we can help close that gap and during this first Home Artificial Nutrition (HANs) Week we are contacting those professionals to open up a meaningful dialogue to establish how we can best deliver the promised improvements.”
In preparation for HANs Week, PINNT is writing direct to doctors, nurses, dietitians, paediatricians and pharmacists to raise awareness of the promises embedded in the NICE Quality Standard and to enquire how best to take this agenda forward and establish improved dialogue between patients and professionals. PINNT has prepared two leaflets on the NICE Quality Standard - one for professionals and one for patients - which will be published at the start of the week.
In parallel, PINNT will be posting to its website and social media outlets, a new story each day for the 7 days of the Week of adults and children on AN therapy, together with their ‘priority wish’ for improving their own healthcare experience.
Keep up to date with HANs Week via the PINNT website - www.pinnt.com
07887-714957, 01264-326427. Interviews and photos are available on request.