Thank you to all our ‘first round’ testers; please find below the first of our 4 update reports on the testing.

The first round of testing of the BAPEN malnutrition measurement tool has received 134 responses, only 17 of which were incomplete. This is tremendous achievement and the development team would like to thank everyone who has contributed so far to this important piece of work.

We have reviewed the submissions and comments to date and have made a number of changes based on this feedback which we hope you will be able to test for us over the coming weeks, if possible using ‘real’ patients/clients. If you don’t feel this is possible at this stage, then please do continue to test the tool using ‘imaginary’ examples! These changes are detailed below, along with some of the results from the testing so far.

The survey will continue to be available for testing at the same link as previously:

https://www.surveymonkey.com/s/BAPEN_test

Throughout this testing phase we will be collating suggestions for additional questions for inclusion and then asking testers for their comments on what they would like to see added to the tool. Look out for a survey in December!

Changes made in response to first wave of feedback (up to 4th November 2014):

  1. Explicit notes of the following added to the front page of the survey:
    a. This survey is not suitable for surveying patients or clients who are being cared for in their own homes.
    b. This survey is not suitable for surveying patients or clients in an outpatient (clinic) setting.
    c. The tool has been explicitly designed for use with adult patients and clients only.
  2. Deletion of the ‘patient reference’ question
  3. Additional checkbox for oedema in patients/clients who are identified with renal, liver or heart failure diagnoses
  4. Simplification of the questions with regard to weight, and inclusion of a checkbox to indicate whether weight and weight loss has been estimated or not
  5. Addition of an e-mail address field to enable ongoing contact with testers

Highlight results from the testing (up to 4th November 2014):

  • 134 responses, 17 incomplete.
  • Good spread across England, Wales, NI and Scotland
  • Top specialties:
    • General medicine (17.16%)
    • Gastroenterology (12.69%)
    • Mixed care (12.69%)
    • Clinical oncology (8.21%)
    • General surgery (8.21%)
  • 71.79% in acute setting.  No responses from community hospitals.
  • Mainly dietitians undertaking the survey (73.13%)
  • Fairly even spread across adult age groups, much lower for under 18s
  • Range of feeding routes, although less in ‘altered textures’
  • Diagnoses:
    • Mostly gastroenterology and liver disease (34.52%)
    • Otherwise a wide range of diagnosis groups
    • Looking at the details, very wide ranging
  • Lots of ‘skips’ for weight data entry suggesting an issue with complexity
  • 47% report less than 5 minutes per patient to complete.  No-one reported taking more than 15 minutes.
  • Over 80% report ‘very simple’ or ‘fairly simple’ to use
  • 40% recommended deleting the patient experience questions and 28% wanted to take out the diagnosis element
  • 96.6% felt the tool was extremely relevant or relevant to some extent
  • 31% felt that there were questions that could be usefully added; key themes were:
    • Inclusion of other screening tools (other than ‘MUST’)
    • Was ‘MUST’ score accurately calculated?
    • Was weight estimated?
    • Correction of weight for ascites oedema
    • Have your individual food preferences been taken into consideration? 
    • Do you have any difficulties chewing or swallowing? 
    • How is your appetite compared to normal/ before you were ill?
  • Other comments reflect:
    • Complexities/issues of using weight and weight loss
    • Clarity for community based practitioners