The UKHPN group is now a Special Interest Group of BAPEN and terms of reference have been prepared. As such, membership of the UKHPN group is free to any member of BAPEN. We aim to be the principal forum for multidisciplinary and multi professional discussion of the management of prolonged intestinal failure. The group’s prime aims are threefold:
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To provide a multi-professional forum enabling communication between those health professionals in the UK who provide home parenteral nutrition (HPN) to adults and children
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To foster excellence in the provision of HPN and in the management of type 2 intestinal failure in the UK through communication, education, research and audit.
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To foster, develop and support networks to manage type 2 intestinal failure and deliver HPN across the UK
The objectives include the organisation of regular meetings. The UKHPN second meeting was held at the Tara Copthorne Hotel London on the 7th May 2008. This was a very successful day, attended by over 100 delegates and speakers. Calea UK Ltd, Clinovia, and Willow Healthcare Ltd provided financial support.
The proceedings were chaired by Jeremy Powell-Tuck (London), Ruth McKee (Glasgow), and Jon Shaffer (Manchester). The meeting typified our multi professional approach drawing on the expert contributions of representatives from among biochemists, surgeons, physicians, paediatricians, dentists and commissioners. In the morning we heard Dr Denis O’Reilly from the Dept of Clinical Biochemistry, Glasgow Royal Infirmary on Trace Element deficiencies and excesses in Intestinal Failure and HPN, Professor Ray Playford, Vice Principal of Barts. and The London, on Intestinal Peptides in Intestinal Failure and HPN, Dr Jeremy Woodward, from the Intestinal Transplantation Unit at Addenbrooke’s Hospital, Cambridge on HPN-related liver disease and intestinal transplantation. The morning session was completed by Alison Lee, St Mark’s Hospital, London, who described her proposal for a national audit of antibiotic prophylaxis in HPN patients in the context of dentistry.
In the afternoon Ms Carolynne Vaizey, Consultant Intestinal Failure Surgeon, St. Marks Hospital reminded us of the disasters which can occur when intestinal failure is not managed with sufficient multidisciplinary expertise, followed by descriptions of the progress being made in the Welsh and Scottish HPN networks by Drs Barney Hawthorne, and Alastair McKinlay. We were brought up to date with the current paediatric British Intestinal Failure Survey by Dr John Puntis of Leeds, and Dr Barry Jones of Dudley updated us on BANS, the British Artificial Nutrition Survey. It was hoped that if an English Network for HPN and IF (HIFNET) was established, it might be possible to gather data not only for home enteral and parenteral nutrition but also on Type 2 Intestinal Failure.
The day was brought to a close by a description on the progress made by HIFNET Andrew Bibby, commissioning lead for severe intestinal services – National Specialised Commissioning team, described the current position of the document “A Strategic Framework for Intestinal Failure and Home Parenteral Nutrition Services for Adults in England. This had been endorsed by the Presidents of the Royal College of Surgeons and Physicians and the National Commissioning Group for Highly Specialised Services and was soon to be taken forward to the Specialist Commissioning Groups.
It is the intention to hold regular meetings of the UKHPN group – if you would like to be kept informed of these, please contact Janet Baxter on 01382 496558 or janetbaxter@nhs.net
Janet Baxter
Jeremy Powell-Tuck
September ‘08
Home Parenteral Nutrition in the United Kingdom
A Position Paper
Prepared by the British Association for Parenteral & Enteral Nutrition, 2003
Dr. Barry JM Jones BSc MD FRCP, Home Parenteral Nutrition Officer, BAPEN
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