Core Groups Updates

Jutta Köglmeier, NIFWG Chair of BSPGHAN

Email: Jutta.Koeglmeier@gosh.nhs.uk

Website: www.bspghan.org.uk

Meetings 2018

Last year, the NIFWG met at the BSPGHAN annual winter meeting in Leeds on 25th January 2018, at Great Ormond Street Hospital in London on 17th May, on 6th September in Edinburgh at the 5th national complex nutrition and intestinal failure rehabilitation network meeting, and at Great Ormond Street Hospital again on 15th November to discuss the NIFWG IF rehabilitation guidelines.

4th National Complex Nutrition, Intestinal Failure Rehabilitation and Transplant Network Meeting on 6th/7th September 2018, in Edinburgh, was extremely well attended and numbers exceeded expectations. Registration and accommodation was free due to secured industry sponsorship and support from SSPGHAN. The next meeting in 2019 will take place in Bristol and will be organised by Tony Wiskin and his team.

At the 2018 BAPEN Conference, NIFWG organised a paediatric symposium on Sugar – see the BAPEN section below.

e-BANS

Most centres in England apart from three (13/16 Blueteq centres) have contributed data to e-BANS.

Unfortunately, Enda Smyth, e-BANS administrator, had to resign for personal reasons. A new administrator will hopefully be appointed in due course to guarantee that e-BANS continues to run effectively. The administrator’s salary is currently paid for by a BSPGHAN innovation grant.

Akshay Batra has sent a report to update the BSPGHAN council how the innovation grant was used and a future application for a second grant is being considered.

BAPEN

BAPEN paediatric symposium 21st November 2018 Harrogate International Centre.

This year’s symposium focused on ‘sugar’ with the aim to consider the potential health benefits of reducing sugar intake in adults and children, review the definitions of sugars and the labelling of food products. The evidence for the effectiveness of different initiatives to reduce population sugar intake, including whether sugar taxes work, were reviewed.

The symposium was integrated into the main BAPEN meeting rather than taking place the day before as last year.

Attendance has hence been much better and the meeting was well received.

Planning of the 2019 BAPEN paediatric symposium taking place in Belfast has already started and the date set for 26th November. Next year’s symposium will be jointly held with BPNG and dedicated to neonatal, paediatric and adolescent nutrition.

BAPEN membership for BSPGHAN members is now free and several BSPGHAN members have already made use of this opportunity.

Allied Health Groups

Pharmacy

BPNG (British Pharmacy Nutrition Group): Revised National Framework for home PN has been extended from 1.4.2018 to 31.3.2020.

The 2018 ESPGHAN PN guidelines have now been published.

Dietitians

Lynn Hagin has taken over from Joan Gavin who had to resign from her role on the NIFWG for personal reasons.

Tracey Johnson’s term will come to an end in 2019. Three strong candidates have applied to replace her on the NIFWG and the working group members have been asked to send their vote to the chair.

Nutrition nurses

Angela Cole was welcomed into the NIFWG as CNS representative.

BIFA

Recent Top Tips article was published within In Touch: Managing children receiving long-term parenteral nutrition (Julian Thomas, Theo Wong).

The group is aiming for one Top Tips article per year. The topic of successful transition planned as the next one: Top Tips for Transition.

Research, Training and current/future projects
Members of the NIFWG have taken part in the European wide CVC survey. The outcome of the survey has been published in JPGN.

Other projects include:

• Guidelines for the diagnosis and management of intestinal failure in childhood. IF guideline meeting took place on 15th November 2018 in London. The next meeting to finalise the guidelines has been scheduled during the BSPGHAN winter meeting in January 2019
• The development of a decision-making tree for feeding neuro-disabled children with deteriorating intestinal function in conjunction with the Royal College of Paediatrics
• Guidelines for the use of blenderised diets in children
• Recommendations for the best method to wean children from intravenous to enteral nutrition
• National survey on jejunal feeding practices in children across the UK
• Long-term outcome of paediatric IF in the UK (last 30 years).

Applications for new NIFWG chair
Jutta Köglmeier will finish her three years as Chair of the NIFWG in January 2019 and hand over to the next Chair at the BSPGHAN council meeting in April 2019.

Two candidates who are both NIFWG members have applied and the new Chair will be announced during the AGM in January.

The members of the NIFWG have agreed that a separate role for a BAPEN representative on the working group should be created. So far, the chair has represented the NIFWG both on BSPGHAN and BAPEN council.

The new BAPEN representative will take over this role and report to the NIFWG chair. The BAPEN representative will be voted by the members of the NIFWG and take up this role in April 2019.

Claire Campbell, NNNG Communications Officer

Email: nationalnursesnutritiongroup@gmail.com

Website: www.nnng.org.uk

Twitter: @NNNGUK

The start of the New Year means changes for the NNNG Committee and Chair, as Liz Anderson steps down and others come to the end of their term of office. We are hugely grateful to Liz for her excellent work as Chair of the NNNG and her unwavering promotion of the importance of nursing within nutritional care. Liz continues to work on BAPEN Council.

Claire Campbell, Nutrition Nurse at Frimley Health, has now taken over as Chair and Natalie Welsh, Nutrition Nurse at Manchester University NHS, as Vice Chair. We have also welcomed two new Committee members: Sharlene Hayward from Kingston Hospital and Georgie Adams, Royal Devon and Exeter.

The NNNG continues to be involved in workstreams with the RCN, HIFNET, and the Nutrition and Hydration Network, to name just a few.

The Committee now has work well underway for the NNNG Conference 2019 and we shall be releasing a save the date very soon!

The updated website and membership means that you can now join the NNNG and receive the benefits all year round, including access to our Best Practice Guidelines and discussion group professional forum. With easy ways to join and pay online, newsletters, reduce conference rates and core group membership to BAPEN, as well as access to professional discussion forum, why not join today?

Kate Hall, PENG Chair

Email: communications.peng@bda.uk.com

Website: www.peng.org.uk

Twitter: @PENGDT

The winners of the 2018 PENG Award were officially awarded at the PENG AGM, which was held at the BAPEN Conference in November. At this meeting we revealed the PENG members who have won a free place on the PENG Clinical Update Course 2019. We also took the opportunity to pass on CN Awards to PENG Committee members who had won a 2018 CN Award but had been unable to attend the presentations in London due to the event clashing with the PENG Study Day. Photos of all the winners can be seen below.

Following the BAPEN Conference, PENG supported the BDA Research Study Day which was a great opportunity for us and we were involved in judging one of the poster workstream topics.

Just before the Christmas break, PENG’s e-newsletter – e-PENlines – went out to members and, within this issue, Alison provided an overview of the PENG PN Study Day which was held in September and was really well evaluated. With a new year comes a new PENG Study Day and Sean White is leading on the 2019 PENG Study Day, which will focus on HEF, and more details will follow soon!

We have recently posted some information on the PENG members’ section of the website, which includes some samples from the updated Pocket Guide. This is just a taster of what is to come, so please do visit the website and keep an eye on the news items as we will keep you posted on expected availability of the updated Pocket Guide to Clinical Nutrition.

On 8th February 2019, the PENG Committee will gather to welcome some new Committee members and review our projects, including feedback from members on what they feel we should also be doing to further support them. After our meeting we will update the PENG website with the new Committee’s details and new Committee links.

If any of you reading this are interested in this year’s PENG Clinical Update Course, you can still register, click here to find out more.

Ruth Newton, BPNG Chair

Email: Ruthnewton1@nhs.net

Website: www.bpng.co.uk

Happy New Year to everyone and I hope everyone is now back into the swing of things at work.

Following the success of our Fundamentals in Parenteral Nutrition Course at the Royal Pharmaceutical Society (RPS) headquarters in Towel Hill, London, we can now announce that this will be running again on the 18th September 2019. The course looks at topics including requirements, monitoring, line access, as well as ethical dilemmas, which are delivered via a mix of lectures and workshops.

We are also in the final stages of planning is our Advanced Study Day to be held on the 8th May 2019 in Leeds. This Study Day will be looking at the issues that may not be addressed at patient level, including aseptic services review and electronic prescribing, presented as lectures and workshops.

Details of both will be on the website shortly and we do encourage delegates to book early as places are limited. Also, if you are not a member of the BPNG then attending the course will give you free membership of BPNG for the year which now also includes BAPEN membership.

The online learning modules continue to take shape as part of our plans as affiliate trainers of the RPS and we hope to have more news in late Spring.

Should you have any suggestions for future educational events please let us know.