Core Groups Updates

Jutta Köglmeier, NIFWG Chair of BSPGHAN

Email: Jutta.Koeglmeier@gosh.nhs.uk

Website: www.bspghan.org.uk

Meetings 2018

The NIFWG has met on January at the BSPGHAN annual winter meeting in Leeds on 25th January 2018, at Great Ormond Street Hospital in London on 17th May, and at the NITE meeting on 28th/29th June in Birmingham.

The Group also gathered on 6th September in Edinburgh at the 5th United Kingdom Complex Nutrition and Intestinal Failure Network Meeting. This meeting was extremely well attended and numbers exceeded expectations. Registration and accommodation were free due to secured industry sponsorship and support from SSPGHAN. The next meeting in 2019 will take place in Bristol and be organised by Tony Wiskin and his team.

A meeting to discuss the IF rehabilitation guidelines is scheduled to take place in London on 15th November 2018. Then, following this, we are looking forward to our symposium at the forthcoming BAPEN Conference on ‘Sugar’ (see below), which is taking place on 21st November.

e-BANS

Most centres in England, apart from three (13/16 Blueteq centres), have contributed data to e-BANS.

Unfortunately, Enda Smyth, e-BANS administrator had to resign for personal reasons. A new administrator will hopefully be appointed in due course to guarantee that e-BANS continues to run effectively.

Akshay Batra has sent a report to update council how the innovation grant was used.

BAPEN

The BAPEN Conference paediatric symposium will take place on 21st November 2018 at the Harrogate International Centre.

This year’s symposium will focus on ‘sugar’ and the aim will be to consider the potential health benefits of reducing sugar intake in adults and children, review the definitions of sugars and the labelling of food products. The evidence for the effectiveness of different initiatives to reduce population sugar intake, including whether sugar taxes work, will be reviewed.

BAPEN membership for BSPGHAN members is now free.

Allied Health Groups

Pharmacy

BPNG (British Pharmacy Nutrition Group): Revised National Framework for Home PN has been extended from 01.04.18 to 31.03.20.

New ESGPHAN PN guidelines have now been published.

Dietitians

Lynn Hagin has taken over from Joan Gavin who had to resign from her role on the NIFWG for personal reasons.

Nutrition nurses

Angela Cole was welcomed into the NIFWG as CNS representative

BIFA

In the June issue of In Touch, Theo Wong, the BSGPHAN representative on BIFA, along with Julian Thomas and the BIFA Committee authored a BIFA Top Tips article on ‘Managing Children Receiving Long-term Parenteral Nutrition’. The plan is to contribute a further BIFA Top Tips article on successful transition next year.

Research, Training and current/future projects

• Members of the NIFWG have taken part in the European wide CVC survey. The outcome of the survey has been published in JPGN
• Guidelines for the diagnosis and management of intestinal failure in childhood: If guideline meeting planned for 15th November 2018 in London
• The development of a decision-making tree for feeding neuro-disabled children with deteriorating intestinal function in conjunction with the Royal College of Paediatrics
• Guidelines for the use of blenderised diets in children
• Recommendations for the best method to wean children from intravenous to enteral nutrition
• National survey on jejunal feeding practices in children across the UK
• Long-term outcome of paediatric IF in the UK (last 30 years).

Claire Campbell, NNNG Communications Officer

Email: nationalnursesnutritiongroup@gmail.com

Website: www.nnng.org.uk

Twitter: @NNNGUK

With new committee members to introduce and welcome in 2019, and the compiling of plans for the next12 months, it is a busy time for the NNNG Committee.

The NNNG have recently been working with the Royal College of Nursing (RCN) on updating of the nutrition and hydration pages of the RCN website. This is designed to give registered nurses and carers guidance and useful links to resources, as well as highlighting the vital role they play in ensuring those in their care receive the appropriate interventions.

We have also begun working alongside the National Hydration Network looking at strategies for bringing to the forefront the consequences of dehydration and how we can better promote hydration within all care settings.

With the NNNG symposium at the BAPEN Conference just around the corner, this year focuses on parenteral nutrition in palliative care, an area in which nutrition support is seeing increased usage. These cases are often complex in their management and challenging in terms of facilitating patients’ discharge home.

The NNNG welcomes new members all year across all professions. Our website is full of resources and our professional forum continues to provide support for members and advice across the broad range of subjects within nutrition, so why not join us?

Kate Hall, PENG Chair

Email: communications.peng@bda.uk.com

Website: www.peng.org.uk

Twitter: @PENGDT

We are currently limbering up for the BAPEN Conference for both the PENG supported HEF session and our AGM, which is on the Wednesday, click here for programme details.

For those of you who are dietitians, please click here for more information on the 2019 PENG Masters Clinical Update Course. The feedback from the 2018 Course was amazing, and is illustrated in the latest edition of e-PENlines. Congratulations to the lucky PENG winners of a free place to the 2019 PENG Clinical Update Course – details of which will be unveiled in the December edition of e-PENlines.

September marked the annual PENG Study Day, which took a different turn this year focusing solely on parenteral nutrition which. The Study Day was really well received and the key take home messages will be shared with PENG members in e-PENlines and slides will be shared in due course. A big THANK YOU must go to Alison Culkin who led the Study Day from start to finish, including surveying BDA members so that the day could be tailored.

However, the timing of the Study Day was not great as it clashed with the 2018 CN Awards event and of course some of the winners were involved in the PENG study day, but Ailsa Kennedy and Carole-Anne were there to represent the PENG Clinical Update Tutors in accepting the CN Award for Nutrition Resource of the Year and also stand in to accept Alison Culkin’s award for Outstanding Achievement and Bruno Mafrici’s for Clinical Nutrition Professional of the Year – congratulations to all winners this year. Also, hot off the press, congratulations to PENG Committee member Paula Young who has just been given a BDA Roll of Honour for her involvement in the Scottish Short Life Working Group.

PENG will be at BAPEN Conference, so please do drop by to the PENG stand – you never know what may be there…

Carolyn Wheatley, PINNT Chair

Email: comms@pinnt.com

Website: http://pinnt.com

Facebook: PINNTcharity

Twitter: @pinntcharity

Following a very successful HAN Week in August, PINNT has had an exciting few months.

At the 40th ESPEN Congress held in Madrid, Spain, PINNT received European recognition for its Medical Tag patient resource, with the presentation of a poster entitled: “A practical patient resource for people on home artificial nutrition; infusing artificial nutrition in ‘normal’ environments”.

Recognition for PINNT’s Medical Tag didn’t just stop there! PINNT were delighted that the Medical Tag was voted as the winner of the 2018 CN Award for New Product of the Year. The CN Awards are voted for by readers of CN Magazines, so we are extremely proud of this achievement.

The CN Awards presentations took place on 26th September at Chandos House, London. Myself, along with Moira Kallis, Charlene Leak and Lynn Wilks from TeamTAG, attended to accept the Award and celebrate with all the 2018 CN Award winners.

Upon hearing the news about the CN Award, Sergeant Darren Coupe from the Armed Policing Division of Dorset Police, who worked with PINNT to produce a helpful public awareness video, said: “I am absolutely delighted that this initiative has won Product of the Year at the 2018 CN Awards. It not only supports and reassures those on home artificial feeding but provides access and necessary information for security staff to confirm medical equipment verification. This in turn allows security staff to focus their efforts in the correct areas whilst improving their performance and maintaining public confidence."

The PINNT Medical Tag is unique because it's one of a kind, dedicated purely to ambulatory feeding pumps and is available free for all PINNT members on request.

To find out more about PINNT’s Medical Tag, please visit: https://pinnt.com/Support/Medical-Tag.aspx