BAPEN has established a Data Governance Group this year to ensure that the organisation has a proper inventory of all its data sets and is GDPR compliant. To that end, BAPEN is asking all of its members if they have any historical data sets which may be owned or part-owned by BAPEN to please inform the BAPEN office (bapen@bapen.org.uk). This is to ensure we have an understanding of what BAPEN data our members possess, so that we can be GDPR compliant.
On a separate note, this Data Governance Group is also looking to recommend a data repository software (such as Redcap) which could be used for future BAPEN research and survey data so that all such data is held in the same place. Please do email the BAPEN office (bapen@bapen.org.uk) if you have any recommendations in addition to Redcap which we should be considering.