About the Intestinal Failure Registry
The British Artificial Nutrition Survey (BANS) was established in 1996 and previously relied on the voluntary contributions of health care professionals to report data on adults and children receiving long term enteral or parenteral nutrition. The reporting of parenteral nutrition data moved to the BAPEN Intestinal Failure Registry and reporting has been mandated for commissioned Intestinal Failure and Home PN centres in England by NHSE which financially supports the Registry. The IFR receives data from all parts of the UK. The provider of the IFR on behalf of BAPEN is to change from April 2026 with an aim to have a UK-wide, comprehensive registry of all patients with Type 2 & 3 intestinal failure.
If you are representing an Adult IF / HPN centre which does not report already please register via: https://ifregistry.streetsheaver.thirdparty.nhs.uk/ifreg. Please note that the IF Registry is only available on the HSCN network.
Frequently asked questions about the IF Registry
Who owns the data stored on the IF Registry?
The IF Registry database remains the intellectual property of BAPEN and requests for data extract must be submitted via the Chair Sarah-Jane Nelson (Hughes). These can be submitted via the BAPEN office: bapen@bapen.org.uk.
How secure is the data recorded on the IF Registry?
The data is hosted on a secure HSCN N3 network. You can read more about data privacy here.
When I click on the link it is broken – why is that?
The IF Registry is available here: https://ifregistry.streetsheaver.thirdparty.nhs.uk/ifreg. Please note that the IF Registry is only available on the HSCN network, so you will need to make sure that you are accessing the link from an appropriate computer.
Where can I get extra help with using the IF Registry?
There is a comprehensive how-to guide available on the homepage when you log in to the IF Registry. Please look on the left hand side of the homepage for our user guidelines.
Extra support is available from the Streets Heaver helpdesk: bans@streets-heaver.com or via their Live Chat function which can be found here: https://support.streets-heaver.com. If you would like additional support please contact the BAPEN office: bapen@bapen.org.uk.
Is the IF Registry only for England?
All centres for Intestinal Failure and Home Parenteral Nutrition designated under NHS England commissioned services are mandated to submit via the IF Registry. Northern Ireland, as a commissioned IF service, also reports as a mandatory requirement of healthcare commissioning. As BAPEN is a UK wide organisation we encourage reporting via the IF Registry from Scotland and Wales to continue to inform and benchmark services across the UK.
Is there a paediatric Intestinal Failure Registry?
A dataset for a paediatric version of the Intestinal Failure Register is in development and news will be coming soon, so watch this space!
