BAPEN is inviting applications for the position of Intestinal Failure Registry Deputy Chair
The Intestinal Registry is undergoing a significant period of change at present with a move to a new database provider NEC.
The Deputy Chair role is a great opportunity for an experienced IF clinician, with a working knowledge of the IF Registry, to drive improvement in IF care and represent BAPEN and the IFR at a national level. Your work will ensure we have a full understanding of the IF care provision in the UK and contribute to improving the care offered to patients in need.
Process of application
Please submit a CV and no more than 500-word support statement to the BAPEN Office bapen@bapen.org.uk by 5pm Friday 16 January 2026.
About the Intestinal Failure Registry
The IF Registry was launched in May 2019 and has received good engagement by reporting centres despite significant challenges experienced with the COVID 19 crisis.
The IF registry data is regularly reviewed by BANS and ongoing modifications to the Registry are made as required. Publication of the first year of data collection was delayed due to COVID 19 and is planned for 2021.
If you are representing an Adult IF / HPN centre which does not report already please register via: https://ifregistry.streetsheaver.thirdparty.nhs.uk/ifreg. Please note that the IF Registry is only available on the HSCN network.
Frequently asked questions about the IF Registry
Who owns the data stored on the IF Registry?
The IF Registry database remains the intellectual property of BAPEN and requests for data extract must be submitted via the Chair Sarah-Jane Nelson (Hughes). These can be submitted via the BAPEN office: bapen@bapen.org.uk.
How secure is the data recorded on the IF Registry?
The data is hosted on a secure HSCN N3 network. You can read more about data privacy here.
When I click on the link it is broken – why is that?
The IF Registry is available here: https://ifregistry.streetsheaver.thirdparty.nhs.uk/ifreg. Please note that the IF Registry is only available on the HSCN network, so you will need to make sure that you are accessing the link from an appropriate computer.
Where can I get extra help with using the IF Registry?
There is a comprehensive how-to guide available on the homepage when you log in to the IF Registry. Please look on the left hand side of the homepage for our user guidelines.
Extra support is available from the Streets Heaver helpdesk: bans@streets-heaver.com or via their Live Chat function which can be found here: https://support.streets-heaver.com. If you would like additional support please contact the BAPEN office: bapen@bapen.org.uk.
Is the IF Registry only for England?
All centres for Intestinal Failure and Home Parenteral Nutrition designated under NHS England commissioned services are mandated to submit via the IF Registry. Northern Ireland, as a commissioned IF service, also reports as a mandatory requirement of healthcare commissioning. As BAPEN is a UK wide organisation we encourage reporting via the IF Registry from Scotland and Wales to continue to inform and benchmark services across the UK.
Is there a paediatric Intestinal Failure Registry?
A dataset for a paediatric version of the Intestinal Failure Register is in development and news will be coming soon, so watch this space!
